To date, there are 100 children world-wide diagnosed with ROHHAD, although the number is likely much higher due
to the lack of awareness of ROHHAD and the
complexity of the diagnosis.
to the lack of awareness of ROHHAD and the
complexity of the diagnosis.
ROHHAD Find A Cure has a vision to CARE for all children
and families living with ROHHAD.

C - Find a Cure
A - Create Awareness of ROHHAD in the medical world to ensure children are
diagnosed accurately
R - Conduct Research to understand ROHHAD syndrome, its symptoms and potential
life saving therapies
E - Educate people about ROHHAD to ensure parents and caregivers recognize the
symptoms and seek medical care; and friends and family can better understand the
complexity of the life-threatening and life-limiting challenges that children with
ROHHAD face