To date, there are 100 children world-wide diagnosed with ROHHAD, although the number is likely much higher due
to the lack of awareness of ROHHAD and the
complexity of the diagnosis.   

ROHHAD Find A Cure has a vision to CARE for all children

​and families living with ROHHAD.
​

C - Find a Cure

A - Create ​Awareness of ROHHAD in the medical world to ensure children are diagnosed
        accurately

R - Conduct ​​Research to understand ROHHAD syndrome, its symptoms and potential life saving
        therapies 

E - Educate people about ROHHAD to ensure parents and caregivers recognize the
       symptoms and seek medical care; and friends and family can better understand the
       complexity of the life-threatening and life-limiting challenges that children with ROHHAD face

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